Heck, what a topic. What does Endo feel like? Well, you are in for a treat. It is a flipping roller coaster. As I have said so many times, everyone is different so endo will feel different for everyone. But this is my experience and my pain.
Before we dig into what Endo feels like, a quick recap on what it is. Endometriosis is when your uterus is the devil. That’s it. Enough said. Okay, no, seriously, Endo occurs when similar lining of your uterus, grows in all the wrong places. Classic devil uterus. So when you get your period, instead of leaving your body, it just hangs around, causes an immense amount of pain and suffering and has a good old laugh. If you want a more in-depth explanation, click here. But in a nutshell: stuff growing in the wrong places, inflammation, pain, not good.
So, what does this all feel like? You guessed it, not great. So an expression which is super common in the endo world is “flare-up.” When I experience an ‘endo flare-up,’ I normally end up in the hospital. I get cramps and back pain every period, but this is a pain I can control and manage. However during a flare-up, I feel completely out of control and I cannot function. I don’t even know how to put it into words. I know it sounds dramatic but dude, it is bad. I start sweating and feel like I am on fire. Sometimes I just lay down on my tiles and cry. Or vomit. That happens too sometimes. People make jokes about how it feels like someone is stabbing them, but that hits me in the feels. The pain is unbearable. The last time I ended up in the hospital, they gave me Endone (strong pain killer) and all it did was make me tired and therefore, no energy to fight the pain at all, so I just chucked my guts out. Not my idea of a good time.
Another thing I experience when my endo is bad is severe pain when going to the loo. WARNING! There will be poo talk. There have been times when I refuse to take a poo because I know how much it will hurt. I just don’t want to go. Or the other extreme and I will sit on the toilet for an hour and sob because it hurts so badly. It isn’t constipation, my poo is fine! It is the pain in my stomach. So yeah, hence the refusal to go.
I don’t know if this helped answer the question or I just needed a rant. Either way, good chat. Everyone experiences endo differently, so their pain will be different from mine. But severe pain, vomiting, bedridden and sweating pretty much sum it up.